Showing posts with label Health. Show all posts
Showing posts with label Health. Show all posts

Sunday, October 14, 2018

Continuing on the topic of Mental Health...

... I came across this video yesterday and it continues the trend of professionals responding to representation of their fields of expertise in popular culture and entertainment. This video was very interesting and I'm now actually hoping he follows in the steps of Dr Mike and LegalEagle and puts a channel together if he has the time and resources.

Real Psychologist reviews Mental Illness in Movies


Mental illness VS mental health problems - Reflecting #onmymind

This is a distinction I've been mulling about for a long time, particularly now as the world becomes increasingly conscious about mental health and mental illness and people are more and more encouraged to be open about their experiences. For years, I've been trying to better ascertain the point at which my own mental stresses and episodes of distress might actually be symptomatic of genuine mental illness as opposed to simply being due to character.

I've looked this up many times in the past but on today's particular little Google dig, prompted by a rather difficult couple of weeks, I found The Department of Health's page on 'What is mental illness?'

Somehow, this is the first time I've seen it so succinctly outlined in a way that seems to make the most sense of my general state of being. If I actually suffer from a mental illness, then I don't want to live in denial of a real problem, but if I don't, I don't want to fall into the belief that I have something I actually don't and I've admittedly been struggling with this distinction for the last decade or so because I've been often enough uncertain about how best to manage.

******

In mid-2003, I suffered a relatively minor setback during a time in which my health was also quite turbulent and proving disruptive to my life and study, being a third year at the time. It wasn't a death or anything so sad as that, but it was a loss that led to a difficult number of months. I dealt with it day to day and got on, it wasn't a total loss of positive emotion, and I am certain I recall having had normal days and normal joys during that period (funnily enough that I mentioned briefly in this very blog), but I was often very emotionally low and life and study just seemed to hammer at it.

Late November then came around and dealt another blow, this time it was a death, and what followed were a good few months of genuinely deadened emotional capacity. This could definitely be described as a depressive period as it was pervasive till about February of 2004 and suffered many days of genuine incapacity. I didn't go to anyone for help at the time, outside of my family and friends, because I saw it more as natural grieving. When the worst eventually passed, I moved on.

Health is always a fun trigger. In 2009, I was diagnosed with a new medical condition to add to my list and I had a bad time dealing with it so someone recommended I see a clinical psychologist. It was a short run because by my first appointment, I was largely doing much better and was attending out of sheer curiosity. Once it was done, I saw no need for it anymore and chose not to proceed.

However, it was also around that time that I began to notice that my PMS, the physical and emotional symptoms of which used to barely make any imprint on my life, began to get quite severe. I have always been very emotionally sensitive and that sensitivity has never been hard to trigger so if I was very preoccupied or upset and endlessly worrying because of a fight or a perceived slight or some other overwhelming situation, that was pretty much par for the course for me.

However around this period (pun originally unintended but now I'll run with it) I began to suffer from more severely depressive episodes after incidents and these episodes became quite marked by suicidal thinking. I'm unsure if that is an overstatement, but to be specific, I would know the entire time that I wouldn't harm myself, but I desperately wanted to or would hope something else would, so that the dark thoughts, the sadness, the sheer pain would end. I would be far too overwhelmed to identify it during, however then it would suddenly lift away and I could just cope again. Life wouldn't suddenly be perfect, but the crushing weight and cocooning darkness would be gone and it would become absolutely manageable again.

After a few more cycles (pun semi-intended this time) of the same thing, I realised it was PMS. The severity of the negative affect did have me wondering if it was PMDD, though as always, the duration of symptoms and severity of disruption remains the distinction. Regardless, realising this has helped me moving forward because I have been able to identify these episodes for what they are and then manage them from there as best I can. Nowadays, when it hits, it can still be deeply and darkly consuming but after this many years, the capacity to cope, even positively respond, and see the light at the end of the tunnel steadily grows. In terms of trying to specifically understand why the mood symptoms have seemed to worsen over the years, my psychologist and I did have a discussion about lifestyle changes and impact on hormonal balances and I've been able to identify various aspects that either alleviate or worsen things during my cycle. It all remains a matter of management.

2017 ought to get special mention, but that would be an entire post on its own. I did, however, somewhat address it in an earlier post.

Finally I, like half the world, suffer from a general social anxiety (though these days, thanks to time and age, social situations are a far happier ground) and a fear of public or group speaking situations (I still have a very real fear of classrooms that still pervades my attendance at training courses, seminars, meetings, etc). This is also exacerbated by my body's tendency to make my skin often break out in rashes in these situations. Over the years, I have been able to gradually deal with gradients of these fears and I am no longer so incapacitated as I once would have been when they occur, but it is also very dependent on the overall situation and my resulting state of mental and emotional strength. As someone who suffers from self esteem difficulties, I quite comfortably know that this has more to do with my own need to build self-confidence and to worry less about non-constructive outside opinion (indeed, something I am always working on whenever I post anything publicly). I am also prone to worry, thanks to a vividly overactive imagination. Things that haven't happened often weigh on me and this is something I continue to work on.

******

Overall, I have found these experiences helpful because recounting them has allowed me to take stock of my actual mental health. I always will be reluctant to stake any claim to a legitimate mental illness, or any illness, that I may not have, particularly when those with real enduring conditions are suffering and living with the real thing day to day. Doing so feels on par with temporarily breaking a leg and then comparing yourself with someone who lives their life in a wheelchair, it just feels insulting and inappropriate.

Furthermore, the two are very different and, depending on the situation, will ultimately require different strategies for coping and overall management. Much like time to heal and undergoing physical or psychological therapy will finally heal that broken leg or get someone through a particularly difficult time, these strategies would only be part of a long term maintenance plan for anyone dealing with more chronic difficulty that may have less concrete cause.

What I have had, alongside the usual day to day difficulties, are quite severe bouts of mental health problems due to a number of factors, both internal and external. Furthermore, last year, I sought professional help to deal with a particularly bad bout because that help was genuinely needed and my psychologist was a much needed pillar of support during that time, even coming into this year which has definitely had its challenges. I can't cheers her enough.

As stated by SANE.org, it is one thing for us to be human and suffer quite natural emotional and psychological responses to outside stressors, but it is another when these problems persist, particularly despite the lack of an external cause or reason, and then significantly affect your ability to function in everyday life. Regardless of the source, if what you're experiencing is causing genuine distress, then anyone needing to, should seek help.

I think that in the end, the reason I tried to put this all together is because identifying the problem is usually the first step to working towards a solution and with the onslaught of information that gets thrown at us all day, every day, via the internet and social media, it is very easy to become overwhelmed or confused by it all and end up with addled conclusions about our state of mind. I know I'm definitely prone to that and as I mentioned, this was a distinction I have wrestled with for some time. This exercise has afforded me a kinder clarity on the matter and I'm genuinely glad about that.

I don't have many people read these entries, but it appears that some still do so I do want to clarify that this is entirely based on my own experience and character. I would never presume to advise anyone else of their own situation, particularly without any knowledge whatsoever. The links from the Department of Health and SANE were of particularly help to me and they may be of help to someone else who may have been pondering the same things I have so I'm happy to share them.

But if anyone is struggling or battling, I do urge you to get help. Talk to someone, a family member, a friend, a doctor, a teacher, a religious or spiritual mentor, and ask for help. Hell, talk to me if you can't think of anyone else, I mean it. Otherwise, there are a ton of resources available to anyone who needs them and again, should anyone reading these words right now need them, I will happily share them here.

All the best to you on your journey 😊

Australian Crisis support lines 24/7 
Obtained from the Mental Health Commission:

Lifeline 13 11 14

Suicide Call Back Service 1300 659 467

Kids Helpline 1800 55 1800

MensLine Australia 1300 78 99 78

Family Drug Support 1300 368 186

Worldwide Crisis Support Lines

List of Suicide Crisis Lines from all over the world, courtesy of Wikipedia (nice, Wiki!)


Saturday, July 07, 2018

This time last year...

I began to write the below late last July as the problems with my health were becoming more complicated. It was simply a walk, but it ended up being a real oasis-like moment of joy amidst the continuing barrage of difficulty that had thus far clouded the year. 
Looking back on it now, I'm just really, really glad that the health has pretty much done a 180 from this time last year, current flu notwithstanding. I don't know what the state of things will be this time next year, particularly once I come off the last of the immunosuppressants, but I'll damn well take what I've got - just like I took that night at a time when I really needed it. 
***
'Last night, I went for a walk from Pyrmont to Glebe.
I had just said farewell to a friend who would soon be returning to the UK and I walked along Harbourside on this quiet Wednesday night, finding it unexpectedly pleasant. Approaching the water, I realised for the first time that the South Steyne had disappeared and I ended up pausing to ask Insta where it had gone. That quick pic posted, I continued past the now empty spot on the water and could see that some restaurants and bars were still open meaning a pleasant hum of activity hung about the harbour. Tourists still milled about the food court and the Watershed was still abuzz with mid-weeknight drinkers as I walked against the cold wind and felt it numb the itchy, burning skin on my face.
Feeling the chilly air fan my face, I suddenly felt open for the first time in months, as though I was once again in a different city and enjoying the freedom of being away and exploring. It was a happily surprising sensation considering the stampeding health issues that, as of the last eight months or so, had made me feel less and less confident about a number of things, like being outdoors unless I absolutely had to or even looking people in the face. 
Then again, it was this latest problem that led to my getting to have this evening in the first place. 11pm on a Wednesday night is a fairly odd stroll time for someone who would under normal circumstances need to be at work on time the next day, however I had my first appointment in years with a derma and it wasn't till mid-afternoon so I was in no rush to get home. I had just done the walk from Glebe to Pyrmont with my friend and my ride home wasn’t ready for another hour, so I was free to stroll.
It was lovely. Due to the constant cycle of illness and recovery at the time, my most prominent state of being was severely anxious fatigue (for which I had begun to seek professional help), the complete opposite of this quiet exhilaration that seemed to grow as the night went on. I was loving gazing up at the city skyline, striding past the water and the bars and the other people, locals and tourists alike. As I made my way towards Tumbalong, allowing myself to actually take in the new Convention Centre for the first time, I admired its clean lines and scattered lights. It seemed like everything felt new and that was delightful.
I continued through the rest of Darling Quarter before gearing towards Chinatown. Thus far, it had been quiet without being too empty for a late night walking solo, lending the night an air of tranquility I don't normally associate with the city. I strolled through Chinatown, which was still lit up and comfortably busy, and eventually moved onto George St to begin the final length up to Broadway. Along the way, I made a few attempts to take pictures and as a result, I've some hopelessly hazy shots to remember the evening by.
The whole time, my skin was still burning and itching away, just like it's doing right now, and I was still grateful that the dimness of the evening meant it wasn't as painfully obvious to all and sundry as I felt it would have been in the daylight.
But despite all that, I felt more like myself than I'd felt in months. I felt freer than I had in months. The evening had inadvertently transformed into a much needed reminder that all the things going wrong hadn't erased my capacity to feel like this. To feel like I could still be outdoors (albeit at night) and still explore and still enjoy things like this newfound tranquility in the midst of a city that, much as I loved it, too often felt like a constant stampede of people.  
It was a nice realisation.'

Monday, January 25, 2016

Window

Photo taken January 24, 2016


Window

They don’t know.
They can’t know and I can never explain it to them.
That I live, and always have lived, behind a wall.
A wall with a window that only serves to taunt me
and remind me of the fact that I can never climb through it
and be a part of the Real World.
I live on the sidelines because I can’t take part in normality.
Because normality can’t help me
and I can’t help it or those who dwell there.
We are too far disconnected and the gap is uncrossable.
Is it? Is it?
Yes! It is! I’ve tried so many times!
I’ve tried and it never works!
The best I’ve been able to do is pretend.
Delude myself into thinking that I’ve reached through the window
and clasped the branch of the tree just outside it.
Clung to that branch and for that moment, owned it,
when in fact my hand only teased the air
and closed in on itself, empty as it had always been.
My closed fist can only pound on the wall for the millionth time.
It’s not my world. It never has been.
Mine is the world from which I see and don’t touch.
From which I hear and don’t cry out.
From which I smell and never taste.
Windows are not doors. They are to look through, not climb through.
If only that damned wall had a door.
But it doesn’t… and I don’t care.

Jelynn Millare © 2005

***

I wrote the above poem when I was 22 and till I posted an excerpt onto my Instagram yesterday after taking the above photo, only 2 other people had ever read it in 11 years. I'm not sure that it bears testament to my being any less afraid of sharing my writing considering the ever-delightful blend of fear and desire that overtakes any creative undertaking (not to mention, I'm still reluctant to even class this as a poem and it took me a somewhat agonising half hour to finally get over myself and put it up). It's unveiling is ultimately the product of a few test photos on my phone leading to a sudden charge of memory and the desire to share trumping my fear of judgement. 

I know we have all been there. Everyone has experienced or lived through something that makes them feel alone or strange or different. Everyone has had hopes that maybe things would get better, that maybe things were looking up, only to have reality completely knock that flimsy house of cards right down.

I've written a bit on here about the emotional fallout of having a condition which was once firmly stamped on my face and in my daily interactions with people and still nowadays, teeters on the precipice of visible and invisible. I've also definitely touched on the painful desire to creatively speak despite being emphatically ill-equipped for exhibitionism and distinctly reluctant to emotionally overindulge for the sake of being a functioning adult.  

The above is merely a snapshot of a once all encompassing mentality that has now been happily relegated to the worst moments and nothing more. The words above will always apply, such is the nature of life and definitely the nature of autoimmune disorders and creative desire, however their power to break me has been severely diminished by struggle, experience and time. 

These days, thanks to that time honoured trio, I sustain mere flesh wounds instead of scars. 

And even better? I open and close and advance and retreat through the window as I please. 

Thursday, June 11, 2015

Today on Facebook

Sunrise
MUM'S POWERFUL FACEBOOK POST ABOUT THE INSENSITIVE THINGS PEOPLE SAY ABOUT HER BABY WITH DOWN'S SYNDROME...

"Here is my baby girl, Louise. She is 4 months old, has two legs two arms, and one extra chromosome. Please, when you meet a Louise, do not ask her mother, “Was it not detected during pregnancy?” Either it was, and the parents took the decision to keep the baby. Or it wasn’t and the surprise was great enough that there’s no need to revisit it. Bear in mind that mothers have a tendency to feel guilty about each and every thing, so a surprising extra chromosome… I don’t need to tell you.

Don’t tell her mother, “It’s your baby no matter what.” No. It’s my baby, period. Plus: ‘nomatterwhat’ is quite an ugly name; I’d rather call her Louise.

Don’t tell her mother, “As she is a Down’s baby, she will… etc.” No. She is a 4-month-old baby who happens to have Down’s Syndrome. It’s not what she IS, it’s what she HAS. You wouldn’t say “she’s a cancer baby.”

Don’t say, “They’re like this, they’re like that.” “They” all have their features, their character, their own tastes, their life. “They” are as different between them as you are from you neighbour.

I know that if you haven’t experienced it, you don’t think about it, but words do matter. They can comfort and they can hurt. So just give it a thought, especially if you’re a doctor or nurse of any kind.

I usually don’t make my status ‘public’ on Facebook, but this one will be. You can read it and share it as you want. Because each year (in France) there are 500 new ‘mothers of Louise’ who can have a day ruined by those kind of words. I know it’s not meant to hurt. But you just need to know."

#sun7

This is one of the most beautiful reply threads I've ever seen on Facebook.

I've only scrolled down so far but even though, thus far, every reply is a voice of support (highly uncharacteristic for your typival Facebook comment thread) and ultimately understanding of a fundamental truth.

Disability of any kind doesn't make anyone less of a person. Clearly, Peter Singer I am not. Thank God.

The fact that anyone thinks it does is just plain sad. Doubt your ability to handle the challenge or wonder about what hardships may come, but don't ever, ever think that child is any less than they are.

Every person has intrinsic value and is important. Nothing on Earth changes that. Not a single thing.

The severe underestimation or outright disregard of that value lies at the core of every atrocity any person has ever committed against anyone else.

We have got to stop treating that assumption as though it were normal. It is absolutely not.

Monday, September 01, 2014


I want to give the girl in this picture such a hug.

I want to tell her that, whether she can imagine it or not, the day will come where she won't have to wake up every morning and carefully pull the mask off of her face and then later have to cake on woolfat and cream before wrapping a bandanna around her head in order to face the world.

That one day, wet packs will have become such a thing of the past, that she won't even be able to remember the last time she had to wear them.

That over time, people will stop pulling themselves and their kids away from her and stop staring and asking her how or if she got 'burned'. That all those looks - pity, fear, confusion, disgust - will all eventually fade away into insignificance.

That one day, her swollen eyes and all those open, raw, pus filled rashes on her face and everywhere else will actually transform from raging monsters into either harmless scars or somewhat more manageable pests and that on even better days, they will go into hiding altogether.

That soon enough, it will have been 16 years and counting since her last hospital stay, a life starkly different to the days when the children's hospital was like her summer home.

That one day, she'll be able to eat more cookies and cakes than she ever dreamed of. Not to mention - chocolate. That's right, kiddo, chocolate will once again be a part of your life and not a poisonous one at that.

And after all of that, I want to thank her.

She is the reason that these days, I am often so pleasantly surprised by how normal the face gazing back in the mirror is and why whenever I find out I can eat something new, I genuinely feel like the luckiest person on the planet. She's also the source of an imagination that was strong enough to get through the hard times and broad enough to make the good times even better.

So thanks, even littler Jelynn, for living through all of that for me. I don't know how you did it, but you did. I'm an adult now and I can barely imagine living life the way you had to, although it occurs to me now that your childlike outlook was a big part of that survival. I know that it was awful for you a huge chunk of the time and I know that all you wanted was to feel some semblance of normalcy, during the good times and the bad and that this desire only made life seem tougher than it really was. Thank you for getting through it all and thus allowing me to live the much kinder life I live now. Life certainly keeps lobbing those curve balls but I wouldn't have the cajones to bat those suckers away if it weren't for you.

Somehow I hope you can hear me and feel my bear hug travelling across the 24 year long chasm running all the way back to good ol' 1990.

Love you, kid.